Oh, this child. The moment she turned ten months old, the toddler came out, and the baby receded into the background. But this birthday tomorrow, as arbitrary as it can be, is the final cut- the coup de grĂ¢ce of her babyhood. Every day she is doing something new. Today she said, "woof". She blows on her food like she is cooling it down. She does "Twinkle Twinkle Little Star" with her hands and dances and sways to any song she hears. Even car commercials. She stretches her arms up when I ask, "How big is Hazel?" and I say "soooooo big!" and she cracks up. She climbs all over me like I'm her gym. Today I caught her stacking blocks, two at a time! She puts thing in a container, instead of just dumping them out. She talks to herself. She points to her crib when she wants her nap. This child is amazing, beautifulandperfect.
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There are so many things coming up in the future- on March 10th Hazel is scheduled to go back to Children's Hospital Boston for another procedure. The scar tissue in her esophagus has formed a stricture, or a narrowing and she has had a lot of difficulty swallowing beyond purees. It's frustrating, because developmentally she wants to feed herself, but physically she can't swallow anything that she might be able to self- feed. They will put her to sleep under general anesthesia and thread a balloon into her esophagus under xray. They will inflate it to a certain pressure that will tear her scar tissue and hopefully open her esophagus. This is a procedure that Hazel may have to have repeated several more times. Can I ask you all one more favor- will you please think of her, and send us your best, strongst, healthiest wishes? There is still the risk of a rupture of the esophagus, but there is also the opportunity to get her swallowing again without choking, regurgitating and aspirating. It would be really nice for us all to be able to relax a bit.
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4 comments:
best of luck to Hazel for her surgery!
you are such a strong and amazing family!
Isn't it amazing? It's like every 3 months there's a whole new person in your house, though they bear a striking resemblance to your own kid. Happy birthday, Hazel. Keep up the good works, Mama.
We'll send our biggest hugs and good thoughts your way.
That last picture is great. There's a little defiance in there that foreshadows her teenage years. You'll have your hands full! Then you can pull out her book and remember the sweet baby.
Wishing you a most happy and joyful birthday, Miss Hazel Porkpie! We can't wait to see you again and have you show us all your new tricks.
Love, Little Miss Maia and her mama Sarah
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